...is now part of Gracedale’s
history, and the few politicians who sought to despoil Gracedale are now themselves history. The Coalition of Alzheimer’s Families was
accused of fomenting “mobocracy” but in fact they led Northampton County in a
remarkable exercise of pure
democracy. Citizens of Northampton
County along with Gracedale’s patients are the beneficiaries.
When I first learned about the attempt to
sell Gracedale to a for-profit corporation, I was angry. Not just at the lies, like the threat of a
massive County tax increase, and not just at the vicious attempt to destroy
every particle of security for the working men and women who care so well for
Gracedale’s patients. I was also angry
that the patients themselves had so little voice in the very community where
they had lived and worked throughout their lives.
I started to make online comments about
the issues (it was a period when I had a little bit more time to do so) and I
sent a letter to The Express-Times into which I put some of my strong
feelings. As a result I received a call
from the COAF inviting me to one of their meetings.
That visit evolved into some of the
warmest friendships a man can have. I
offered some help in the form of writing—the COAF wasn’t even aware of how to
compose and distribute press releases, so I started by working up a few drafts
and longer pieces for them. I objected
to editors at both local newspapers about the less-than-adequate coverage their
reporters were giving to the COAF (and that was apart from at least one
egregiously fawning article in which the would-be sellers were congratulated on
their nearly-accomplished success!).
My role was minimal. The COAF and Gracedale’s workers are the ones
who collected petition signatures and persevered in their tough fight. Gracedale found her best defenders from the
ranks of those who know her best.
After the success of the Referendum I
naturally returned to wondering about the folks at the epicenter—those who rely
on Gracedale simply because they can’t care themselves. Thanks to the COAF and Gracedale’s staff, I
have been visiting Gracedale herself.
I will make up for lost time, for past
ignorance, by submitting stories about some of Gracedale’s residents who give
me permission to write about them. Turns
out they aren’t invisible at all. It is
only the self-involvement and isolation of the rest of us which has kept us all
apart.
In the weeks ahead I will be submitting
these articles to this site. There is no
better place, just as there are no better advocates for Gracedale’s patients
than the COAF and Gracedale’s staff. I
hope readers will stay tuned.
--Donald Dal Maso